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Parallel Paths Needed to Maximize Group B Strep (GBS) Disease Prevention for All Babies: A GBS Parent Organization Perspective

10/25/2018

 

Presented by Marti Perhach, BS


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Internet Crowdsourced Parent-Suggested Research Agenda for the Prevention of Prenatal-onset Group B Strep Disease (POGBSD)

10/24/2018

 

Presented by Amy Perhach, BA


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Primary and Secondary Prevention of Fetal Death Caused by Maternal Infection

10/23/2018

 

Presented by James A. McGregor, MDCM


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Making or Breaking a Marriage: Couple Communication at the time of loss and over time

10/22/2018

 

Presented by Sherokee Ilse, BA, BLFA


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Perinatal grief and the social world of objects: (re)ordering the past, the present and the future

10/21/2018

 

Presented by Paul Cassidy, BBS MPhil​


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Should Written Consent Be Required before Fetal Membrane Stripping Especially among GBS Carriers?

10/20/2018

 

Presented by Jane Hanson-Ernstrom, RN, BSN, CNM, MS

Info Statement on FMS
Learning Consent Form
FMS Algorithm

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Advocating for the health of your baby? If not you, then who? (Part 1)

10/19/2018

 

Presented by Sherokee Ilse, BA, BLFA


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Advocating for the health of your baby? If not you, then who? (Part 2)

10/18/2018

 

Presented by Sherokee Ilse, BA, BLFA


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Advocating for the health of your baby? If not you, then who? (Part 3)

10/17/2018

 

Presented by Sherokee Ilse, BA, BLFA


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Provider Support in Subsequent Pregnancies after a GBS+ Birth

10/16/2018

 

Presented by Bevin Tomlin, BS, MS


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Parent Story of Benjamin

10/15/2018

 
Picture
BENJAMIN — AUSTRALIA
Died in utero April 22, 2017 and was delivered April 24, 2017
Prenatal-onset
Mother's GBS Status: Positive
Gestational Age: 37 weeks, 4 days
Age Harmed:
 37 weeks, 4 days gestation

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Parent Story of David James

10/15/2018

 
Picture
DAVID JAMES — AUSTRALIA
Stillborn May 11, 2018
Prenatal-onset
Mother's GBS Status:
 Not tested
Gestational Age: 35 weeks
Age Harmed: 35 weeks gestation

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Parent Story of Blair

10/15/2018

 
Picture
BLAIR — USA
Born October 9, 2008
Prenatal-onset
Mother's GBS Status: 
Tested positive
Gestational Age: 35 weeks
Age Harmed: 35th weeks of pregnancy

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Parent Story of Brielle Marie Entze

10/15/2018

 
Picture
BRIELLE MARIE ENTZE - USA 
Stillborn July 22, 2018
Prenatal-onset
Mother's GBS Status: 
Positive
Gestational Age: 39 weeks
Age Harmed: Stillborn at 39 weeks

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Parent Story of Brogan

10/15/2018

 
Picture
BROGAN — USA
Lived November 3, 2001 to November 8, 2001
Early-onset
Mother's GBS Status: 
Tested negative
Gestational Age: 37 weeks
Age Harmed: 6 Hours

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Parent Story of Santiago Nicholas

10/15/2018

 
Picture
SANTIAGO NICHOLAS— USA
June 26, 2018- July 2, 2018
Early-onset
Mother's GBS Status: 
Tested Negative
Gestational Age: 38 weeks, 4 days
Age harmed: 1 day old

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Parent Story of Emma and Braiden

10/15/2018

 
EMMA - USA
Stillborn June 15, 2012
Prenatal-onset
Mother's GBS Status: 
Tested positive
Gestational Age: 20 weeks  
Age Harmed: 20 weeks gestation
Picture
BRAIDEN - USA
Miscarried October 2013
Prenatal-onset
Mother's GBS Status: 
Tested positive
Gestational Age: 17 weeks
Age Harmed: 17 weeks gestation


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Parent Story of Rosalie Marie

10/15/2018

 
Picture
ROSALIE MARIE — USA
Born September 30, 2014
Prenatal-onset

Mother's GBS status: Tested positive
Treatment: IV antibiotics during labor and delivery
Gestational Age: 38 weeks, 6days
Age Harmed:
 At delivery, but believes the infection was prenatal-onset 
​

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Parent Story of Finley Genevieve

10/15/2018

 
Picture
FINLEY GENEVIEVE — USA
Lived September 28, 2017 to September 29, 2017
Early-onset
Mother's GBS Status: 
Tested negative
Gestational Age: 39 weeks
Age harmed: 18 hours old

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A prospective, observational study on causes of stillbirths in African women from South Africa

10/14/2018

 

Presented by Dr. Shabir Madhi and Narrated by Clare Cutland


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What Are Ways to Help Establish a Likely Cause of Perinatal Mortality?

10/13/2018

 

Presented by Marti Perhach, BS


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Post-Mortem Authorisation – Parent to Parent

10/12/2018

 

​Presented by Dr. Margaret-Jane Evans B.Sc., MBChB., FRCPath (Paeds), LLM (Edin)

Accompanying video:

Parent to Parent Post Mortem Authorisation Animation from SANDS Lothians on Vimeo.


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Development of Putative Working Definitions of Prenatal-onset Group B Strep (POGBS) Invasive Disease Using "Internet Commons" GBS Parent and Provider Sources

10/11/2018

 

Presented by James A. McGregor, MDCM


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Delayed Acquisition of Rectovaginal GBS Colonization: A Hidden Benefit of GBS Conjugate Vaccines

10/10/2018

 

Presented by Lawrence C. Paoletti, PhD

Editor's Note: At 12:03 when red and blue boxes are mentioned, the correct reference is to the red and yellow boxes showing GBS types

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"Reduced Discomfort" Vaccination: Pain Prevention Strategies to Encourage Readiness for a Maternal Vaccine against Group B Streptococcus

10/9/2018

 

Presented by James A. McGregor, MDCM


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    - Determining Cause/ Assessing The Burden
    - GBS Disease Prevention For All Babies
    - Introduction To POGBSD
    - Parent Stories
    - Pathways Of Infection
    - Potential Prevention Strategies
    - Respect & Autonomy
    - Suggested Research
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  • Home
  • About GBS
    • What Is Group B Strep? >
      • Prenatal-onset GBS Disease
      • Early-onset GBS Disease
      • Late-onset GBS Disease
      • GBS in Nonpregnant Adults
      • Maternal GBS Infections
    • How to Help Protect Your Baby >
      • How Do You Get GBS?
      • GBS Testing
      • Testing Negative
      • Subsequent Pregnancy
      • Risk Factors
    • Signs of GBS Infection
    • GBS Vaccine Efforts
  • Resources
    • GBS Awareness Materials
    • Online Learning Events >
      • GBS Community Days 2023
      • ICGBS 2022
      • ICGBS 2021
      • ICGBS 2020
      • ICGBS 2019
      • Prenatal Infection Prevention Symposium
      • POGBSD Symposium
    • Prenatal Infection Prevention Resources
    • GBS Medical Articles and Abstracts
    • GBS Parent Connection & Grief Support
  • Parent Stories
    • GBS Babies
    • Story Submission
    • Subsequent Pregnancies
    • Possible GBS Infections
    • Perinatal Infection Stories
  • WAYS TO HELP
    • Make a Donation
    • Fundraising
    • The WAVES Study
    • Campaigns & Projects
    • Awareness Calendar >
      • Group B Strep Awareness
      • Prenatal-onset GBS Disease Recognition Month
      • Prenatal Infection Prevention Month
    • Suggested Topics for Researchers
  • About Us
    • Our Mission
    • Our Board of Directors
    • Our Partners & Perinatal Health Affiliates
    • Fast Facts
    • Contact Us