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Parent Story of Rosalie Marie

10/15/2018

 
Picture
ROSALIE MARIE — USA
Born September 30, 2014
Prenatal-onset

Mother's GBS status: Tested positive
Treatment: IV antibiotics during labor and delivery
Gestational Age: 38 weeks, 6days
Age Harmed:
 At delivery, but believes the infection was prenatal-onset 
​
Rosalie was my 3rd child to be born. In both of my prior pregnancies I had tested negative for GBS and my babies were fine. With Rosalie I tested positive for GBS and was told it was no big deal. I would just receive IV antibiotics during labor so I believed my Dr. On Sept 30th I went into labor and in just 3 hours she was born. I barely received 1 bag of penicillin. She was tachycardic all throughout labor and when she was delivered she was blue. She was not breathing and tachycardic. NICU was called in and they resuscitated her for 40 seconds. Once breathing she was in extreme respiratory distress. She was immediately taken to the NICU and put on oxygen, an IV, got antibiotics, had a spinal tap, and could not maintain her blood sugar so put on something for that as well. Her blood cultures and spinal tap never actually grew anything but we were told she was born septic due to the GBS causing an infection while in utero. Might I add my water had never broken and was intact the entire time. My OBGYN ruptured the sac 4 min before delivery. Rosalie spent 8 days in the NICU on medication and today is an otherwise healthy 2.5 year old little girl. She was diagnosed at 15 months with a heart condition called SVT. 

I would like to mention that sometime during my 20th week of pregnancy I had a very bad UTI that had me admitted to the hospital for 3 days. I was never informed then if GBS was the cause of that infection. 

I am now 13 weeks pregnant and am terrified. At my 6 weeks prenatal appointment they cultured my urine for GBS and found a small trace of it already in my urine but are electing to do nothing about it as it is not current ACOG regulations. I have demanded a consult with a perinatal specialist who I see this week. I am terrified every day that I will lose this baby or repeat the horror of my daughter's story again. I know I have a happy ending and feel for those who suffered much worse fates. GBS is a big deal and the medical profession needs to begin recognizing that.

— Kacy Kennedy
Marti Perhach
10/21/2018 01:26:22 pm

Kacy, thank you for sharing Rosalie Marie's and your GBS experience.

Currently, Rosalie Marie's GBS infection would be considered early-onset by most medical providers, but please note the timing of when she was told the infection began and when her labor started. This is a situation that would be better defined as prenatal-onset to be able to work towards prevention strategies that would be effective before labor and delivery.


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  • Home
  • About GBS
    • What Is Group B Strep? >
      • Prenatal-onset GBS Disease
      • Early-onset GBS Disease
      • Late-onset GBS Disease
      • GBS in Nonpregnant Adults
      • Maternal GBS Infections
    • How to Help Protect Your Baby >
      • How Do You Get GBS?
      • GBS Testing
      • Testing Negative
      • Subsequent Pregnancy
      • Risk Factors
    • Signs of GBS Infection
    • GBS Vaccine Efforts
  • Resources
    • GBS Awareness Materials
    • Online Learning Events >
      • GBS Community Days 2023
      • ICGBS 2022
      • ICGBS 2021
      • ICGBS 2020
      • ICGBS 2019
      • Prenatal Infection Prevention Symposium
      • POGBSD Symposium
    • Prenatal Infection Prevention Resources
    • GBS Medical Articles and Abstracts
    • GBS Parent Connection & Grief Support
  • Parent Stories
    • GBS Babies
    • Story Submission
    • Subsequent Pregnancies
    • Possible GBS Infections
    • Perinatal Infection Stories
  • WAYS TO HELP
    • Make a Donation
    • Fundraising
    • The WAVES Study
    • Campaigns & Projects
    • Awareness Calendar >
      • Group B Strep Awareness
      • Prenatal-onset GBS Disease Recognition Month
      • Prenatal Infection Prevention Month
    • Suggested Topics for Researchers
  • About Us
    • Our Mission
    • Our Board of Directors
    • Our Partners & Perinatal Health Affiliates
    • Fast Facts
    • Contact Us