GBS Parent Connection & NICU Support
Group B Strep Discussion Group (Private Facebook Group)
This group is a community for people to ask questions and support each other on topics surrounding group B strep.
Group B Strep International's Facebook Page
Group B Strep International’s Facebook “Group” Page
Join our Facebook group to connect with other GBS parents and keep posted about GBS awareness and prevention opportunities.
Parents of Group B Strep Survivors (2006-Present)
A parent led group for support and discussion surrounding GBS Survivors.
Project NICU
Project NICU offers connection, support and community to all involved in the NICU Journey.
nicu Helping Hands
Family support for fragile beginnings
Hand to Hold Nicu Babies – Parent Support
Hand to Hold® provides personalized support before, during and after a NICU stay to help ensure all NICU families thrive.
This group is a community for people to ask questions and support each other on topics surrounding group B strep.
Group B Strep International's Facebook Page
Group B Strep International’s Facebook “Group” Page
Join our Facebook group to connect with other GBS parents and keep posted about GBS awareness and prevention opportunities.
Parents of Group B Strep Survivors (2006-Present)
A parent led group for support and discussion surrounding GBS Survivors.
Project NICU
Project NICU offers connection, support and community to all involved in the NICU Journey.
nicu Helping Hands
Family support for fragile beginnings
Hand to Hold Nicu Babies – Parent Support
Hand to Hold® provides personalized support before, during and after a NICU stay to help ensure all NICU families thrive.
Grief Support
Aaliyah in Action
Comforting Families Who Have Experienced Perinatal Loss, Neonatal Loss, or Infant Death
Pregnancy Loss Research Group (Ireland)
This group leads national research to better understand pregnancy losses and experiences. Local support groups are linked from their home page. Check out their graphic narrative, "Why My Baby Died," to help you manage your bereavement and plan for the future.
Return to Zero: H.O.P.E.
RTZ HOPE provides compassionate and holistic support for people who have experienced unimaginable loss during their journey to parenthood.
Babies Remembered
This site offers valuable support and resources for bereaved parents and families! Babies Remembered is also an excellent site regarding advocacy work, bereavement support training, speakers, care guidelines, and networking for professionals.
The Compassionate Friends
The mission of The Compassionate Friends is to assist families toward the positive resolution of grief following the death of a child of any age and to provide information to help others be supportive.
First Candle/SIDS Alliance
Whether you are seeking information on ways to help your baby survive and thrive or have experienced the death of a precious infant to SIDS, Stillbirth or other cause of infant death, this site is your gateway to support. For more information, feel free to call First Candle toll free at (800) 221-7437. Grief counselors are available 24 hours a day, 7 days a week.
Healing Hearts for Noah
This Facebook page is dedicated to helping bereaved families who have lost a child due to miscarriage, stillbirth, or infant death because of their son, Noah, who lived only two days due to group B strep.
Jalen’s Gift Facebook Grief Support Group
This is a very supportive closed online grief support group which you can ask to join.
Learn Psychology’s Webpage “Navigating Grief: A Guidebook for Grief Awareness & Understanding”
Highlights of this guide include:
– Extensive resources to help those coping with grief
– Comprehensive look at the various types of grief
– Specific resources for supporting those dealing with loss and trauma
Loss Doulas International
Compassionate and informed Loss Doulas supporting Baby Loss moms and families.
The MISS Foundation
The MISS Foundation is committed to providing crisis support and long term aid to families after the death of a child from any cause.
Missing GRACE Foundation
The mission of Missing GRACE Foundation is to provide resources and support for families that have experienced: pregnancy loss, infant loss, infertility or adoption and to advocate for comprehensive, patient focused prenatal care for all women.
Center for Loss in Multiple Birth (CLIMB)
Provides parent-to-parent support for all of us who have experienced the death of one or more of our twins or higher multiple birth children at any time from conception through birth, infancy and early childhood.
Forever Footprints
Working to ensure that families who have suffered a pregnancy or infant loss receive the best support, comfort, and resources possible.
Hope After Loss
A community of women and men who grieve the loss of a pregnancy or infant. Through peer support, burial assistance, education, and awareness initiatives, we provide connections, comfort, and care to those who have experienced the loss of a baby.
Mommies Enduring Neonatal Death (MEND)
A Christian, nonprofit organization that reaches out to families who have suffered the loss of a baby through miscarriage, stillbirth, or early infant death.
Pregnancy Loss and Infant Death Alliance
Supports health care practitioners and parent advocates in their efforts to improve care for families who experience the death of a baby during pregnancy, birth, or infancy.
Share Pregnancy and Infant Loss Support
Serves those whose lives are touched by the tragic death of a baby through pregnancy loss, stillbirth, or in the first few months of life.
Strings of Pearls
Comforting families who have experienced perinatal loss, neonatal loss, or infant death. Provides a nurturing and safe place for families as they navigate the path following a fatal prenatal diagnosis that will result in the death of their baby prior to, or shortly after birth.
Comforting Families Who Have Experienced Perinatal Loss, Neonatal Loss, or Infant Death
Pregnancy Loss Research Group (Ireland)
This group leads national research to better understand pregnancy losses and experiences. Local support groups are linked from their home page. Check out their graphic narrative, "Why My Baby Died," to help you manage your bereavement and plan for the future.
Return to Zero: H.O.P.E.
RTZ HOPE provides compassionate and holistic support for people who have experienced unimaginable loss during their journey to parenthood.
Babies Remembered
This site offers valuable support and resources for bereaved parents and families! Babies Remembered is also an excellent site regarding advocacy work, bereavement support training, speakers, care guidelines, and networking for professionals.
The Compassionate Friends
The mission of The Compassionate Friends is to assist families toward the positive resolution of grief following the death of a child of any age and to provide information to help others be supportive.
First Candle/SIDS Alliance
Whether you are seeking information on ways to help your baby survive and thrive or have experienced the death of a precious infant to SIDS, Stillbirth or other cause of infant death, this site is your gateway to support. For more information, feel free to call First Candle toll free at (800) 221-7437. Grief counselors are available 24 hours a day, 7 days a week.
Healing Hearts for Noah
This Facebook page is dedicated to helping bereaved families who have lost a child due to miscarriage, stillbirth, or infant death because of their son, Noah, who lived only two days due to group B strep.
Jalen’s Gift Facebook Grief Support Group
This is a very supportive closed online grief support group which you can ask to join.
Learn Psychology’s Webpage “Navigating Grief: A Guidebook for Grief Awareness & Understanding”
Highlights of this guide include:
– Extensive resources to help those coping with grief
– Comprehensive look at the various types of grief
– Specific resources for supporting those dealing with loss and trauma
Loss Doulas International
Compassionate and informed Loss Doulas supporting Baby Loss moms and families.
The MISS Foundation
The MISS Foundation is committed to providing crisis support and long term aid to families after the death of a child from any cause.
Missing GRACE Foundation
The mission of Missing GRACE Foundation is to provide resources and support for families that have experienced: pregnancy loss, infant loss, infertility or adoption and to advocate for comprehensive, patient focused prenatal care for all women.
Center for Loss in Multiple Birth (CLIMB)
Provides parent-to-parent support for all of us who have experienced the death of one or more of our twins or higher multiple birth children at any time from conception through birth, infancy and early childhood.
Forever Footprints
Working to ensure that families who have suffered a pregnancy or infant loss receive the best support, comfort, and resources possible.
Hope After Loss
A community of women and men who grieve the loss of a pregnancy or infant. Through peer support, burial assistance, education, and awareness initiatives, we provide connections, comfort, and care to those who have experienced the loss of a baby.
Mommies Enduring Neonatal Death (MEND)
A Christian, nonprofit organization that reaches out to families who have suffered the loss of a baby through miscarriage, stillbirth, or early infant death.
Pregnancy Loss and Infant Death Alliance
Supports health care practitioners and parent advocates in their efforts to improve care for families who experience the death of a baby during pregnancy, birth, or infancy.
Share Pregnancy and Infant Loss Support
Serves those whose lives are touched by the tragic death of a baby through pregnancy loss, stillbirth, or in the first few months of life.
Strings of Pearls
Comforting families who have experienced perinatal loss, neonatal loss, or infant death. Provides a nurturing and safe place for families as they navigate the path following a fatal prenatal diagnosis that will result in the death of their baby prior to, or shortly after birth.
Grief/Trauma Resources
Grief Resources
Angel Gown Program
Gowns provided free of charge to hospitals and families in the US
Honoring the memory of a child over the holidays - and beyond
Silent loss and the clinical encounter: Parents’ and physicians’ experiences of stillbirth–a qualitative analysis
Maureen C Kelley and Susan B Trinidad.
BioMed Central Pregnancy and Childbirth. 201212:137.
How not to say the wrong thing.
Susan Silk and Barry Goldman
Los Angeles Times. April 7, 2013.
How to Help a Grieving Friend: 11 Things to Do When You’re Not Sure What to Do
Megan Devine
The Huffington Post. Nov. 25, 2013. Updated: Feb. 22, 2016.
Center for Complicated Grief
Offers a listing of certified and informed therapists in complicated grief treatment. Therapists can be found in states across the nation and internationally.
Caring for Patients Who Experience Stillbirth: Dos and Don'ts
OB.Gyn.News commentary by Heather Florescue, MD. Published October 16, 2020.
Gowns provided free of charge to hospitals and families in the US
Honoring the memory of a child over the holidays - and beyond
Silent loss and the clinical encounter: Parents’ and physicians’ experiences of stillbirth–a qualitative analysis
Maureen C Kelley and Susan B Trinidad.
BioMed Central Pregnancy and Childbirth. 201212:137.
How not to say the wrong thing.
Susan Silk and Barry Goldman
Los Angeles Times. April 7, 2013.
How to Help a Grieving Friend: 11 Things to Do When You’re Not Sure What to Do
Megan Devine
The Huffington Post. Nov. 25, 2013. Updated: Feb. 22, 2016.
Center for Complicated Grief
Offers a listing of certified and informed therapists in complicated grief treatment. Therapists can be found in states across the nation and internationally.
Caring for Patients Who Experience Stillbirth: Dos and Don'ts
OB.Gyn.News commentary by Heather Florescue, MD. Published October 16, 2020.
Trauma Resources
"What Life Is Like After Having My Son Fight for His Life in the ICU"
Blog by GBS mom, Amanda Caldwell.
Online yoga to reduce post traumatic stress in women who have experienced stillbirth: a randomized control feasibility trial
Huberty, J., Sullivan, M., Green, J., Kurka, J., Leiferman, J., Gold, K., & Cacciatore, J. (2020). BMC complementary medicine and therapies, 20(1), 173. https://doi.org/10.1186/s12906-020-02926-3
Blog by GBS mom, Amanda Caldwell.
Online yoga to reduce post traumatic stress in women who have experienced stillbirth: a randomized control feasibility trial
Huberty, J., Sullivan, M., Green, J., Kurka, J., Leiferman, J., Gold, K., & Cacciatore, J. (2020). BMC complementary medicine and therapies, 20(1), 173. https://doi.org/10.1186/s12906-020-02926-3
Parent Support Video Presentations
- Provider Support in Subsequent Pregnancies after a GBS+ Birth by Bevin Tomlin, BS, MS
- Making or Breaking a Marriage: Couple Communication at the time of loss and over time by Sherokee Ilse, BA, BLFA
- Perinatal grief and the social world of objects: (re)ordering the past, the present and the future by Paul Cassidy, BBS, MPhil
- Advocating for the health of your baby? If not you, then who? (Part 1) (Part 2) (Part 3) by Sherokee Ilse, BA, BLFA
- Compassion Heals by Gabriela Foster, M.ED
- Maternal Identity and Grief Resilience by Michelle Sepulveda, MA
- Why, Where & How Perinatal Loss Parents Grieve Online by Lindsey Henke, MSW, LICSW
- Introduction of the water method for preservation of the deceased fetus by Ilona Tiemens-van Putten, MsC, MD
- Why Stigma should not be forgotten about in stillbirth awareness and prevention Danielle Pollock, PhD
Pregnancy After Loss Support
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If you have found a support resource that has been particularly helpful, please share it with us at [email protected]! For basic information on GBS, visit our GBS info pages.
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