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Why, Where & How Perinatal Loss Parents Grieve Online

2/27/2019

 
Measurable Learning Objectives:
At the conclusion of this presentation, participants should be able to...​
  1. Describe ways perinatal loss parents use online environments to process grief and subsequent pregnancies.
  2. Outline normal online bereavement behaviors of perinatal loss parents.
  3. Identify the benefits and risks associated with perinatal grief in the online world.

Picture
Lindsey Henke, MSW, LICSW
Lindsey M. Henke, is a clinical social worker practicing as a psychotherapist specializing in maternal mental health with a focus on perinatal grief and trauma and the pregnancy that follows a loss. She received her undergraduate degree and Masters in Social Work from the University of Minnesota. She is the Executive Director of Pregnancy After Loss Support (PALS) a 501c3 which she founded in 2014, after the birth of her baby born after the stillbirth of her first child in 2012. She is dedicated to advocating for grieving parents and those pregnant again after the death of their child. ​
Emilie Bosque
2/28/2019 08:39:53 am

You mention that some mothers will stay in online groups to help support others, but do you find that most people have long engagements with online groups or that they filter out through the healing process?

Lindsey Henke
2/28/2019 01:07:59 pm

I have seen both happen. Some stick around to help give back to other members as part of their own healing process and others leave when they have received what they need from the group.

Amy Perhach
2/28/2019 09:24:10 am

Thank you so much for this great presentation! Working with a nonprofit which has a focus on those impacted by a GBS infection, I think it is very important to acknowledge and help support those grieving. I also liked how you mentioned that there are someone parents grieving that are "lurkers." From an organizational standpoint, you want to create the most interaction as possible, but from an interpersonal standpoint, it is important to realize that some prefer to grieve through learning without participant. It is not about how many shares or comments there are; it's about the people you reach. This concept is pivotal for support organizations that want to cater to their whole audience.

Lindsey Henke
2/28/2019 01:10:13 pm

Yes! This is an excellent way of summerazing it. I’m my online community work, the research I’ve read and in my clinical work I have seen those who choose to just read or “lurk” as the research refers to them often still comment on benifiting from the group.

June Hill
2/28/2019 11:39:14 am

Your presentation really resonated with me. I have lost a child, and one of my friends is currently grieving after losing her son in the third trimester. Her and I do not keep in close contact, but she has shared a lot over Instagram. It is touching to see her be able to use social media and not make her loss taboo.

Lindsey Henke
2/28/2019 01:14:29 pm

I am very sorry for the loss of your child. I do believe that social media (when not perfectly filtered) can be helpful for us to see our grieving family members and friends vulnerability in a way we might not have been able to witness otherwise. This might not always be the case. And even if we aren’t an online sharer of our own sufferings, witnessing others who choose to grieve publically can validate our own pain.

Marti Perhach
3/1/2019 05:25:26 am

Thank you for the very insightful presentation and giving me lots of ideas on how we can better support bereaved parents with our resources!


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  • Home
  • About GBS
    • What Is Group B Strep? >
      • Prenatal-onset GBS Disease
      • Early-onset GBS Disease
      • Late-onset GBS Disease
      • GBS in Nonpregnant Adults
      • Maternal GBS Infections
    • How to Help Protect Your Baby >
      • How Do You Get GBS?
      • GBS Testing
      • Testing Negative
      • Subsequent Pregnancy
      • Risk Factors
    • Signs of GBS Infection
    • GBS Vaccine Efforts
  • Resources
    • GBS Awareness Materials
    • Online Learning Events >
      • GBS Community Days 2023
      • ICGBS 2022
      • ICGBS 2021
      • ICGBS 2020
      • ICGBS 2019
      • Prenatal Infection Prevention Symposium
      • POGBSD Symposium
    • Prenatal Infection Prevention Resources
    • GBS Medical Articles and Abstracts
    • GBS Parent Connection & Grief Support
  • Parent Stories
    • GBS Babies
    • Story Submission
    • Subsequent Pregnancies
    • Possible GBS Infections
    • Perinatal Infection Stories
  • WAYS TO HELP
    • Make a Donation
    • Fundraising
    • The WAVES Study
    • Campaigns & Projects
    • Awareness Calendar >
      • Group B Strep Awareness
      • Prenatal-onset GBS Disease Recognition Month
      • Prenatal Infection Prevention Month
    • Suggested Topics for Researchers
  • About Us
    • Our Mission
    • Our Board of Directors
    • Our Partners & Perinatal Health Affiliates
    • Fast Facts
    • Contact Us