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NAMI - USA
Born November 17, 2017 Late-onset Mother's GBS Status: Tested negative Gestational Age: 38 weeks Age Harmed: 7 weeks |
My baby was born term at 38 weeks, healthy and in good spirits. My GBS test was mandatory during my pregnancy and it came back with negative results. When Nami was a few days shy of 2 months, I trusted my gut feeling that something was wrong with her. The main sign I could read on my own was very poor feeding. Other than that she did not have fevers, low grade temperature, constant fussiness, or rashes. Forty-eight hours before I took her to her doctor she developed a high-pitched cry that came at no particular time. That along with very poor appetite told me I needed to go.
We made a regular pediatric appointment with her PCM and as soon as she was in the examination room they called EMS over from the other side of the hospital & we were in an ER surrounded by all the pediatric care the hospital had. She was showing active seizure activity once all her clothes were off and she was very lethargic. Seizures in infants are NOT that of a more grown toddler/adult. If you even QUESTION it for one second, ASK. It is a very distinct movement in the baby's chest & abdominal area. I would have never known. She was taken to emergency CT and MRI tests and imagery showed not only was it late-onset meningitis but we also faced massive hydrocephalus, all simultaneously occurring in my daughter's head. Infectious diseases required the 21 day GBS antibiotic course while in PICU, and neurosurgery required shunt placement for the massive hydro.
She survived after being told she was moments away from dying. She is currently a thriving 17 month old, has undergone 4 neurosurgeries, and is still dealing with hydrocephalus. She has survived! She is my first and only child, I am a single active duty mother and was at the time of her acute illness. You never think it could be you or your child until it is. Always, always trust your instincts moms and moms-to-be. We are gifted with mother’s intuition for a reason.
- Denise Roman
We made a regular pediatric appointment with her PCM and as soon as she was in the examination room they called EMS over from the other side of the hospital & we were in an ER surrounded by all the pediatric care the hospital had. She was showing active seizure activity once all her clothes were off and she was very lethargic. Seizures in infants are NOT that of a more grown toddler/adult. If you even QUESTION it for one second, ASK. It is a very distinct movement in the baby's chest & abdominal area. I would have never known. She was taken to emergency CT and MRI tests and imagery showed not only was it late-onset meningitis but we also faced massive hydrocephalus, all simultaneously occurring in my daughter's head. Infectious diseases required the 21 day GBS antibiotic course while in PICU, and neurosurgery required shunt placement for the massive hydro.
She survived after being told she was moments away from dying. She is currently a thriving 17 month old, has undergone 4 neurosurgeries, and is still dealing with hydrocephalus. She has survived! She is my first and only child, I am a single active duty mother and was at the time of her acute illness. You never think it could be you or your child until it is. Always, always trust your instincts moms and moms-to-be. We are gifted with mother’s intuition for a reason.
- Denise Roman
To learn more about Perinatal & GBS Misconceptions, click HERE.
To learn more about the Signs & Symptoms of Preterm Labor, click HERE.
To learn more about the Signs & Symptoms of GBS Infection, click HERE.
To learn more about Why Membranes Should NOT Be Stripped, click HERE.
To learn more about How to Help Protect Your Baby from Group B Strep (GBS), click HERE.
To learn more about the Signs & Symptoms of Preterm Labor, click HERE.
To learn more about the Signs & Symptoms of GBS Infection, click HERE.
To learn more about Why Membranes Should NOT Be Stripped, click HERE.
To learn more about How to Help Protect Your Baby from Group B Strep (GBS), click HERE.