Group B Strep International
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Picture
MADDIE - USA
GBS Survivor

Late-onset

Mother's GBS Status:
Not tested
Gestational Age: Full-term (c-section)
Age Harmed: 7 weeks


My daughter was full term. There was no GBS testing done while pregnant due to me having a repeat c-section and there only being a 1% chance of her getting the disease. (GBSI note: The current CDC recommendations are that all pregnant women should be tested for GBS between 35-37 weeks gestation as onset of labor or rupture of membranes can occur before a planned c-section.)

At 7 weeks old we rushed her to the hospital for a temp of 102.5. They took her vitals, gave her tylenol, drew some blood, and sent us home when her temp was 100.7. Five hours after returning home her temp spiked again, back up to 102.9. We rushed her to the hospital where they did a spinal tap and drew more blood. The strep b had infected her blood, spinal fluid, and urine. She was diagnosed with meningitis (which she had 1% chance of getting as a result of the strep b). She was hospitalized for 2 weeks. They had to do a 2nd lumbar puncture on the 3rd day to make sure the bacteria was gone. The first 5 days she spent in the hospital, trying to get the IV to stay in, blew all her veins in both arms, hands, and feet. She was then transferred to another hospital to get a Stent, that would surgically be put in for the remainder of the hospital stay to receive the full course of the antibiotics.
​
Ever since, she has seizures due to the scar tissue left behind from the meningitis. And her last episode of seizures, the activity was worse due to her getting older. When I ask why do doctors take such a huge risk, I always get told the same thing. 1% is so little and chances of getting the strep b is so rare. But now my daughter has to spend the rest of her life with her condition because the 1% doesn't matter. And in the future she could possibly have speech, vision, or hearing problems. Some people end up with brain damage. I'm glad that her father and I got her to the hospital in time before that happened, but she didn't deserve this, nor do any of the other 1% of the people. They matter, too. We take a chance with our child's life and CPS gets called, but if a professional does it's a big oops. I understand doctors can't possibly know everything and their job is to practice medicine, but why take such a big risk when it could cost somebody their life, especially an innocent child? So I am sharing my story because I hope in the future they make a change where regardless if GBS positive or negative, they give the child antibiotics at birth, besides the ones they already do.

— Sarah Stewart, MI, USA

Sarah shares GBS info verbally.

​To learn more about Perinatal & GBS Misconceptions, click HERE.

To learn more about the Signs & Symptoms of Preterm Labor, click HERE.

To learn more about the Signs & Symptoms of GBS Infection, click HERE.

To learn more about Why Membranes Should NOT Be Stripped, click HERE.

To learn more about How to Help Protect Your Baby from Group B Strep (GBS), click HERE.

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  • Home
  • About GBS
    • What Is Group B Strep? >
      • Prenatal-onset GBS Disease
      • Early-onset GBS Disease
      • Late-onset GBS Disease
      • GBS in Nonpregnant Adults
      • Maternal GBS Infections
    • How to Help Protect Your Baby >
      • How Do You Get GBS?
      • GBS Testing
      • Testing Negative
      • Subsequent Pregnancy
      • Risk Factors
    • Signs of GBS Infection
    • GBS Vaccine Efforts
  • Resources
    • GBS Awareness Materials
    • Online Learning Events >
      • GBS Community Days 2023
      • ICGBS 2022
      • ICGBS 2021
      • ICGBS 2020
      • ICGBS 2019
      • Prenatal Infection Prevention Symposium
      • POGBSD Symposium
    • Prenatal Infection Prevention Resources
    • GBS Medical Articles and Abstracts
    • GBS Parent Connection & Grief Support
  • Parent Stories
    • GBS Babies
    • Story Submission
    • Subsequent Pregnancies
    • Possible GBS Infections
    • Perinatal Infection Stories
  • WAYS TO HELP
    • Make a Donation
    • Fundraising
    • The WAVES Study
    • Campaigns & Projects
    • Awareness Calendar >
      • Group B Strep Awareness
      • Prenatal-onset GBS Disease Recognition Month
      • Prenatal Infection Prevention Month
    • Suggested Topics for Researchers
  • About Us
    • Our Mission
    • Our Board of Directors
    • Our Partners & Perinatal Health Affiliates
    • Fast Facts
    • Contact Us