Group B Strep International
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Picture
LUKE - USA
Lived April 27, 2014 to August 26, 2014

Late-onset

Mother's GBS Status:
Not tested
Gestational Age: 25 weeks
Age Harmed: 3 weeks




​I gave birth to him at 25 weeks. He was perfectly fine until he got late-onset GBS. I wasn't far enough along to have ever been tested and I was 19 so I didn't know it even existed. The GBS progressed into meningitis. The hospital we were at made it sound like he would just have learning difficulties. When we were transferred to children's hospital the GBS came back, but they got it under control before it got worse. It was there that i found out that the meningitis had melted 80% of his brain and he would never be able to do anything. He would never walk, talk, sit up, nothing. I was prepared. Then his head started to grow. It was filling up with spinal fluid--a piece of his brain that circulated the fluid was melted. I had to make the decision of giving him endless surgeries for his entire life that could cause infections and pain when he'd never be able to tell me or bring him home and let him experience things before he passed away. I was told he had the piece of his brain that would remember what's happening so I chose to bring him home. He was home for 26 days before he passed. I know I made the right decision, but it still hurts.

— Amber Hewitt, USA


​To learn more about Perinatal & GBS Misconceptions, click HERE.

To learn more about the Signs & Symptoms of Preterm Labor, click HERE.

To learn more about the Signs & Symptoms of GBS Infection, click HERE.

To learn more about Why Membranes Should NOT Be Stripped, click HERE.

To learn more about How to Help Protect Your Baby from Group B Strep (GBS), click HERE.

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  • Home
  • About GBS
    • What Is Group B Strep? >
      • Prenatal-onset GBS Disease
      • Early-onset GBS Disease
      • Late-onset GBS Disease
      • GBS in Nonpregnant Adults
      • Maternal GBS Infections
    • How to Help Protect Your Baby >
      • How Do You Get GBS?
      • GBS Testing
      • Testing Negative
      • Subsequent Pregnancy
      • Risk Factors
    • Signs of GBS Infection
    • GBS Vaccine Efforts
  • Resources
    • GBS Awareness Materials
    • Online Learning Events >
      • GBS Community Days 2023
      • ICGBS 2022
      • ICGBS 2021
      • ICGBS 2020
      • ICGBS 2019
      • Prenatal Infection Prevention Symposium
      • POGBSD Symposium
    • Prenatal Infection Prevention Resources
    • GBS Medical Articles and Abstracts
    • GBS Parent Connection & Grief Support
  • Parent Stories
    • GBS Babies
    • Story Submission
    • Subsequent Pregnancies
    • Possible GBS Infections
    • Perinatal Infection Stories
  • WAYS TO HELP
    • Make a Donation
    • Fundraising
    • The WAVES Study
    • Campaigns & Projects
    • Awareness Calendar >
      • Group B Strep Awareness
      • Prenatal-onset GBS Disease Recognition Month
      • Prenatal Infection Prevention Month
    • Suggested Topics for Researchers
  • About Us
    • Our Mission
    • Our Board of Directors
    • Our Partners & Perinatal Health Affiliates
    • Fast Facts
    • Contact Us